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My name is Kim Andras Bourg & I am a resident here! |
I have a hereditary form of a progressive neurological disease called Ataxia. The form of Ataxia that I have is named Friedreich's Ataxia (FA or FDRA for short). This disease attacks the nerve cells which causes the muscles in the entire body to weaken...As more and more nerve cells die, simple everyday tasks become more and more difficult which eventually leads to a life of total independence. The only thing part of the body that is NOT affected by this disease is the brain, therefore & I cannot stress this enough, Friedreich's Ataxia DOES NOT AFFECT MENTAL CAPABILITIES so it leaves an active and often very intelligent mind trapped in a severely physically disabled body.
Although more than 150,000 men, women and children across the United States are affected by either a hereditary or sporadic form of Ataxia, many Americans are unaware of the disease. Ataxia can strike anyone anywhere in the world and has no regards to age, race and/or gender!
As with many degenerative diseases of the nervous system, currently there are no treatments or cure for Ataxia.
If you have any questions, or would like further information, please feel free to come to my room (#615) or email me at: KBOURG3@sw.rr.com
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